ISGEDR Joint Meeting - Oslo 2025 - Recordings Available
We are excited to announce the ISGEDR 2025 Oslo Recordings are available to Joint Meeting Delegates. Recordings will be available via a password-protected web page with access details being mailed to delegates directly. Access is until the end of 2025 with Protected PDFs of presentations being added where permitted.
DISCLAIMER: Presentations at the ISGEDR meeting are chosen by a meeting committee based on topics of interest to members. Content of presentations is the responsibility of each presenter and does not represent the opinions of ISGEDR.
Join us on September 11-13 for the International Society of Genetic Eye Disease and Retinoblastoma bi-annual hybrid meeting, ISGEDR 2025, held jointly with the European Retinoblastoma Group (EURBG), in Oslo, Norway. Hosted by Oslo University Hospital and the University of Oslo, this prestigious event brings together leading experts, researchers, and clinicians to share groundbreaking insights into oculogenetics and retinoblastoma.
With a diverse program of lectures and parallel sessions, the meeting provides a unique opportunity to explore the latest advancements in the field, engage with a global network of professionals, and participate in meaningful discussions.
Set against the backdrop of Oslo's vibrant culture and breathtaking landscapes, ISGEDR 2025 promises to be both an educational and memorable experience not to be missed, whether you can attend in person or virtually.
Countdown to ISGEDR 2025 - Oslo
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Our Hosts
Preparing for ISGEDR 2025 in Oslo
Event Details
- Dates: 11-13 September 2025
- Location: Oslo, Norway (in-person and virtual options available) Day 1: Nasjonalmuseet Day 2+3: Georg Sverdrups hus – University Library - University of Oslo
- Hosts: Oslo University Hospital and the University of Oslo
- Collaboration: European Retinoblastoma Group (EURBG)
Key Dates
- Registration: 15 February – 15 August 2025. Virtual registration will remain open for the duration of the meeting.
- Abstract Submission: 15 February – 30 June 2025
- Travel Grant Submission: 1 May 2025
- Notification of Abstract Acceptance: 1 July 2025
Travelling to Oslo
Oslo is a vibrant city that is easy to reach and navigate.
- Flights: Oslo Airport (OSL) is well-connected with direct flights from major international cities.
- Public Transport: The city’s efficient public transport system includes trams, buses, and trains. (Ruter public transportation for trams, buses, and trains)
Visa Requirements: Check if you need a visa to enter Norway and apply in advance if required by clicking here https://www.udi.no/en/want-to-apply/visit-and-holiday.
For visa-related questions, contact Rachel Ellertsen email: rachel.antvantage@icloud.com
Visit Visit Oslo for detailed travel information.
Hotels
We recommend staying at Thon Hotel Slottsparken or close by. This hotel is located just a short walk from the National Museum our venue on Day 1 and a short tram ride to the University for Day 2 & 3. You can find a discount code below.
Thon Hotels: Book via this link
Thon Hotel Astoria Book via this link
Thon Hotel Astoria is an affordable and centrally located hotel close to Karl Johan and the Oslo central railway station, close to shopping, attractions and restaurants. Our staff is here to make your stay a pleasant one.
Thon Hotel Spectrum Book via this link
Thon Hotel Spectrum is centrally located in Oslo, only 5 minutes from Oslo central railway station. Enjoy the best of the city’s shopping, restaurants and nightlife, close to Oslo Spektrum, Karl Johan, the Oslo Opera House and Oslo City.
Thon Hotel Slottsparken Book via this link
Thon Hotel Slottsparken is an attractive apartment hotel in the centre of Oslo, located right next to the Royal Palace. Here you are within walking distance of all that Oslo has to offer, from museums and shopping to restaurants and nightlife.
Comfort Hotel Xpress Central Station Oslo Book via this link
Set just 1 minutes' walk from Karl Johans Gate shopping street, this hotel offers self check-in service, free WiFi access and modern rooms with a flat-screen TV. Oslo Central Station is 328 feet away. All the soundproofed rooms at Comfort Hotel Xpress Central Station include a work desk and a private bathroom with shower. Guests can relax with a drink in the bar or buy snacks from the lobby shop. Breakfast products are also available. Staff are also happy to provide restaurant and city tips. Oslo Opera House is a 5-minute walk away. Akershus Fortress is 0.6 mi from the hotel.
Clarion Hotel The Hub: Centrally located with a special 10% conference discount (use link below when booking). Clarion Hotel® The Hub | Hotel in Oslo | Strawberry
Comfort Hotel Karl Johan: A budget-friendly option near The Hub, also offering a reduced rate, 15% discount (use link below when booking). Hotel in Oslo | Comfort Hotel Karl Johan | Strawberry
Venues
DAY 1:
Meeting & Social at Storsalen, National Museum Oslo
The meeting will begin at the National Museum’s Storsalen, a stunning venue showcasing Norway’s rich cultural heritage. Conveniently located in the heart of Oslo, the museum provides an inspiring atmosphere for the opening day.
Learn more about the National Museum.
Address: Brynjulf Bulls plass 3,0250,Oslo
Mingle at Barcode Street Food
Join us at Barcode Street Food, Bjørvika for a relaxed and informal gathering where you can continue your discussions, connect with colleagues old and new, and enjoy great food and drinks in a vibrant setting. It’s the perfect way to unwind after the day’s sessions. Barcode Street Food is a short walk from the Opera House, so be sure to check it out on your way to the Mingle.
*Please note that this is a self-funded event, and all food and beverages are at your own expense.*
Address: Dronning Eufemias gate 14, 0191 Oslo
Learn more about Barcode Street Food.
DAY 2:
Meeting at Georg Sverdrup’s House, Blindern, University of Oslo
The sessions will continue at Georg Sverdrup’s House on the University of Oslo’s Blindern campus. This modern academic facility offers state-of-the-art conference amenities.
Address: Georg Sverdrups hus, Moltke Moes vei 39, 0851 Oslo
Learn more about Georg Sverdrup’s House.
Dinner at Sporten
Dinner will be held at Sporten, a charming venue overlooking Oslo surrounded by nature. Buses will transport you from the University of Oslo to the venue and back to National Theatre in the city center. Dinner is included in your registration fee.
Address: Holmenkollveien 204, 0784 Oslo
DAY 3:
Meeting at Georg Sverdrup’s House, Blindern, University of Oslo
The sessions will continue at Georg Sverdrup’s House on the University of Oslo’s Blindern campus. This modern academic facility offers state-of-the-art conference amenities.
Dinner
12 September 2025
Location: Sporten, Oslo - Sporten Selskapslokale
The Dinner is included in your registration fee. This exclusive event will be held at Sporten, a charming venue surrounded by nature. Buses will transport attendees from the University of Oslo to the venue and back to the city center.
Accompanying guest suggested program
Firstly, you might want to consider purchasing the Oslo pass or the Oslo hop on hop off bus.
DAY 1
Vigeland Park (Frogner Park)
Start your day at one of Oslo's most famous landmarks. The Vigeland Park is home to over 200 sculptures by Gustav Vigeland. It’s a beautiful space to stroll and enjoy art in nature.
Time: 1.5–2 hours
Nobel Peace Center
Head towards the Nobel Peace Center, located by the Oslo harbor. Here you can learn about the Nobel Peace Prize, its history, and the laureates who have made remarkable contributions to peace.
Time: 1 hour
Oslo Opera House
Walk towards the Oslo Opera House, where you can take in its stunning architecture and enjoy panoramic views of the city from its sloping roof.
Time: 1 hour
Akershus Fortress
A historic site with a beautiful medieval castle and views over the Oslo Fjord. Explore the grounds and learn about the fortress's long history dating back to the 13th century.
Time: 1.5 hours
DAY 2: Museums and Viking Heritage
I suggest taking a ferry to/from Bygdøy. The fjord is very pretty and a great way to get to Bygdøy.
Viking Ship Museum
One of Oslo's most iconic museums, the Viking Ship Museum is home to well-preserved Viking ships and artifacts. It’s a must for history buffs.
Time: 1–1.5 hours
Fram Museum
After the Viking Ship Museum, head to the Fram Museum to explore Norway’s polar exploration history. The museum houses the Fram, the most famous Arctic exploration ship.
Time: 1–1.5 hours
Kon-Tiki Museum
Just next to the Fram Museum, the Kon-Tiki Museum tells the story of Thor Heyerdahl’s famous journey across the Pacific Ocean on a balsa wood raft.
Time: 1 hour
Bygdøy Peninsula
Spend some time walking around the Bygdøy Peninsula, where these museums are located, and enjoy its natural beauty and coastal views. You can visit one of the beaches in summer or just stroll around the area.
Time: 1–2 hours
DAY 3: Art, Culture, and History
Munch Museum
Visit the Munch Museum, dedicated to the life and works of Edvard Munch. It houses an impressive collection of his paintings, drawings, and prints.
Time: 1.5 hours
The Royal Palace & Palace Park
Visit the Royal Palace, home to the Norwegian royal family. You can watch the Changing of the Guard ceremony and take a peaceful walk through the surrounding Palace Park.
Time: 1 hour
Karl Johans Gate
Walk down Oslo's main street, Karl Johans Gate, lined with shops, cafés, and historical buildings. Stop by the Parliament House and Oslo Cathedral as you explore the city center.
Time: 1 hour
DAY 4: Modern Oslo and the Waterfront
Astrup Fearnley Museum of Modern Art
Begin your day at this striking modern art museum on the Oslo waterfront. With a great collection of contemporary art and impressive architecture designed by Renzo Piano, it’s a fascinating place to explore.
Time: 1.5 hours
Tjuvholmen
Explore the Tjuvholmen area around the museum, which is home to art galleries, boutiques, and sculptures along the water.
Time: 1 hour
Holmenkollen Ski Museum & Ski Jump
Take a trip to the iconic Holmenkollen Ski Jump. Visit the Ski Museum and enjoy panoramic views of Oslo from the top of the jump.
Time: 1.5 hours
Dress Code
The dress code for all events during ISGEDR25 is smart casual
Program
We are excited to announce the ISGEDR 2025 Oslo program!
This year’s meeting will feature a diverse and dynamic lineup of speakers and sessions, including the prestigious named lectures: the Franceschetti Lecture, Ellsworth Lecture, Judith Kingston Lecture, and François Lecture. The program also includes paper and poster sessions, cases, mini-symposiums, patient sessions, and the EURBG Business Meeting - all highlighting the latest developments in the field.
While most of the schedule is now available, a few details are still being finalised. We encourage you to check back regularly to download the most up-to-date version of the program.
We look forward to welcoming you to an engaging and inspiring meeting in Oslo!
Named Speakers
Professor Graeme C.M. Black OBE DPhil FRCOphth FMedSci
Graeme is Professor/Consultant of Genomics and Ophthalmology at The University of Manchester and Manchester University Hospitals NHS Foundation Trust. Professor Black qualified in Medicine from Oxford and then undertook clinical training in Ophthalmology and Medical Genetics. During training Graeme undertook at DPhil with Professor Ian Craig in the Department of Biochemistry in Oxford, studying the genetics of X-linked inherited ophthalmic disease, a period that enabled him to develop his combined subspecialty interests. Having moved to Manchester in 1995 Graeme is a former Wellcome Trust Clinician Scientist Fellow and Senior Research Fellow. His major research interest is the investigation of genetic disorders associated with visual disability. He leads a busy clinical service, as well as overseeing scientific teams providing accredited genomic testing for inherited eye disorder patients. Previous key leadership positions include: Director, NIHR Manchester Biomedical Research Centre, 2009-12; Institute of Human Development, 2012-15; Manchester Centre for Genomic Medicine / NW Genomic Laboratory Hub, 2015-21.
Professor of Ophthalmology,
Vagelos College of Physicians and Surgeons, Edward S Harkness Eye Institute, Columbia University, New York, NY
Irene H Maumenee, MD
She is a medical school graduate of the University of Goettingen, Germany. She joined the Department of Ophthalmology at the University of Geneva, Switzerland, where she wrote a thesis on X-linked retinitis pigmentosa. From there she moved to the University of Honolulu, Hawaii, where she studied population genetics. As part of her studies, she initiated the long term analysis of achromatopsia on Pingelap, a small island in the Federated States of Micronesia. The studies resulted in identification of the first gene for colorblindness, CNGB3.
She moved to the Department of Medical Genetics at Johns Hopkins University in 1969. The Department had been founded by Dr Victor A McKusick, who had a strong interest in disorders of connective tissue, including the Marfan Syndrome. Her interest in genetic eye diseases made her welcome at the Institution and she stayed the next 40 years. She wrote her AOS thesis on the Marfan Syndrome and continues to work on the group of diseases, which entail dissections of the aorta.
She recently joined the Faculty of the Department of Ophthalmology at Columbia University Medical Center. She will continue her studies in genetic projects at this institution.
Jefa de clinica, Investigadora, CONICET-Hospital de Pediatria JP Garrahan, Combate de los pozos 1881, CP 1245, Buenos Aires, Argentina
Paula Schaiquevich, PHD
Dr Paula Schaiquevich is a clinical pharmacist and obtained her PhD in 2003 on Pharmacokinetics at the University of Buenos Aires, Argentina. As a post-doctoral scientist, she worked at St Jude Children´s Research hospital (Memphis, US) on Pharmacokinetics of antineoplastic drugs in children and preclinical models. Afterwards, she returned to her home country and founded the Unit of Innovative Treatments at Hospital de Pediatria JP Garrahan, the largest pediatric hospital in Argentina. In 2019 she has been appointed Principal Researcher of the National Council of Research (CONICET) and Chief of Clinics.
Her research work focuses on translational research in retinoblastoma including the development of novel active and local treatments, and the development of preclinical models used to understand the mechanisms of tumor progression and dissemination in metastatic retinoblastoma to tailor treatment.
She was the recipient of the IATDMCT Young Investigator Award (2013, US), ARVO/Merck Collaborative Research Fellowship Award (2013, US), and the INNOVAR award by the Ministry of Science (2016, Argentina) among others.
She has published over 110 papers in peer-reviewed, international journals, 4 book chapters, and mentored 12 PhD students (6 finished doctoral thesis and 6 currently undergoing). She has been the principal investigator of several national and international grants.
She has been the president of the Argentinean Society of Experimental Pharmacology and is currently a council member of the International Association of Therapeutic Drug Monitoring (IATDMCT) and member of the executive committee of the International Union of Pharmacology (IUPHAR).
Registration
Registration Categories and Fees in € Euro
* not including low and middle-income countries
**OECD list of countries with low-income or middle-income
You can also register one accompanying person for an additional fee of 150 EUR.
The social event on 11 September 2025 at the National Museum is highly recommended and costs an additional 10 EUR.
Note: ISGEDR members enjoy reduced fees. Not a member yet? Renew or become a member to access the discount.
In-Person Registration
Haven’t registered yet? Please contact Rachel at rachel.antvantage@icloud.com as soon as possible — we are close to capacity and spaces are filling fast!
Virtual Registration
Unable to attend in person — please register as a virtual participant. We will keep this registration option open throughout the meeting.
Sponsors
The content of this meeting is independent of commercial interests
Any conflict of interest by the scientific organizers or the presenters will be disclosed in the related presentations, in the meeting proceedings, and on the meeting website.
Donations and support from Research organizations and Patient organization:
- The Research Council of Norway
- The Norwegian Retinitis pigmentosa patient organization
Platinum Sponsors
PYC Therapeutics
SpliceBio
Gold Sponsors
Santen
Silver Sponsors
Ray Therapeautics
Chiesi
Roche
Bronze Sponsors
AAVantgarde
Alkeus Pharmaceuticals
Beacon Therapeutics
Oxford University Press
Novartis
SparingVision
Thea Nordic
Endorsements
SIOP – International Society
of Paediatric Oncology
ISCEV – International Society for
Clinical Electrophysiology of Vision
Program Committee
ISGEDR Sāo Paulo 2023
The ISGEDR 2025 Meeting is organized by a dedicated team of experts:
Josephine Prener Holtan, MD PhD, Local Lead Organizer and Program Chair, ISGEDR 2025, Dept. of Ophthalmology, Oslo University Hospital, Oslo, Norway
Prof. hon. Dr.med Francis L. Munier, President of ISGEDR, Retinoblastoma Consultant, Jules-Gonin Eye hospital, Faculty of Biology & Medicine, Lausanne University, Lausanne, Switzerland
Bart P LEROY, MD, PhD, Executive Vice-President ISGEDR, Ophthalmologist & Clinical Geneticist, Dept of Ophthalmology & Ctr for Medical Genetics, Ghent University Hospital, Ghent, Belgium
Elias I TRABOULSI, MD, MEd, Treasurer ISGEDR, Stanley Stone Professor of Pediatric Ophthalmology & Ophthalmic Genetics Cole Eye Institute Cleveland Clinic, Cleveland, OH, USA
Prof. Ragnheidur Bragadottir, MD, PhD, Dept. of Ophthalmology, Oslo University Hospital, Institute of Clinical Medicine, Oslo University
Contact Information
For further inquiries, please reach out to:
- Josephine Prener Holtan, MD PhD
Local Lead Organizer and Program Chair
jospre@ous-hf.no
- Rachel Eilertsen
Event Lead
rachel.antvantage@icloud.com
We look forward to welcoming you to Oslo, whether in person or virtually, for a meaningful and inspiring meeting.
ISGEDR 2025 - Oslo
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