2019 ISGEDR Meeting – 29th to 31st August


Sektion Genetische Ophthalmologie
der Deutschen Ophthalmologischen Gesellschaft

Abstract Submission now Closed

Abstract Submission expired on Sunday, June 9, 2019 at midnight

Meeting Flyer can be download here: PDF

21st Meeting of the International Society for Genetic Eye Diseases & Retinoblastoma a joint Meeting with Section Genetics of the German Opthalmological Society (DOG)

Meeting Details

The meeting is sponsored by the International Society for Genetic Eye Diseases and Retinoblastoma in association with the German Ophthalmological Society (DOG)

Abstract Submission expired on Sunday, June 9, 2019 at midnight.

Meeting Flyer can be download here: PDF

Course Description

The ISGEDR Meeting brings together researchers and clinicians interested in various aspects of ocular genetics to exchange and learn about the latest developments in the field. The meeting is comprised of presentations of original research by meeting participants, as well as plenary sessions and symposia addressing current topics by distinguished invited speakers. The meeting also features named lectureships given by world-renowned specialists in the field of ophthalmic genetics and retinoblastoma.

Target Audience

The meeting will cater for a variety of audiences including general ophthalmologists, pediatric ophthalmologists, retina specialists as well as residents-in-training. Genetic counselors with an interest in eye diseases will find it equally beneficial. Molecular geneticists who have an interest in ocular disease and researchers in the field will find it an excellent venue to present their work and learn about that of others. Ophthalmologists and oncologists who treat patients with retinoblastoma will find the meeting sessions well organized to discuss the latest in diagnosis and management of patients with this most common pediatric eye tumor.


At the end of the meeting the participants will be able to:

  • Discuss the latest advances in gene therapy of inherited eye diseases
  • Discern the differences between different current modalities of genetic testing
  • Decide on the appropriate therapy for different forms and stages of retinoblastoma
  • Detect the most prominent imaging features of inherited retinal diseases
  • Recognize newly defined forms of retinal disorders and other genetic diseases of the eye 

For more information, please contact the meeting office

PD Dr. Markus Preising

Scientific Programme

This is a Scientific Programme for the 2019 ISGEDR meeting.

We will continuously update the information.

Thursday, 29th August


Onsite Registration opens

08.30 – 09.00


Prof. Dr. Birgit Lorenz
President of ISGEDR
Speaker of the Section Genetics of the German Ophthalmological Society (DOG)
Head and Chairman of the Department of Ophthalmology, Justus-Liebig University Giessen and of the University Medical Center Giessen and Marburg GmbH, Giessen Location
Prof. Dr. Joybrato Mukherjee
President of the Justus-Liebig University Giessen
Prof. Dr. Wolfgang Weidner
Dean of the Medical Faculty, Justus Liebig University, Gießen
Prof. Dr. Andreas Böning
Chief Medical Officer, University Medical Center Giessen and Marburg GmbH, Giessen Location


09.00 – 10.30

1. Session – Performing And Communicating Molecular Diagnostics

10.30 – 11.00

Coffee Break

Poster Session

11.00 – 12.30

2. Session – Clinical studies in gene therapy I

12.30 – 14.00

Lunch Break

Poster Session

14.00 – 15.30

3. Session – Stem cells

15.30 – 16.00

Coffee Break

Poster Session

16.00 – 16.30

Franceschetti Medal & Lecture

Paul Sieving, Bethesda, USA

16.30 – 18.00

4. Session – Substantiating Success in Treatment


Dinner Reception

Restaurant Heyligenstaedt,
Aulweg 41, 35392 Gießen

Friday, 30th August


Onsite Registration

08.30 – 10.00

5. Session – Clinical studies in gene therapy II

10.00 – 10.30

Coffee Break

Poster Session

10.30 – 11.00

Ellsworth Lecture

Laurence Désjardins, Paris, France

11.00 – 12.30

6. Session – Precision Care for Retinoblastoma Children

12.30 – 14.00

Lunch Break

Poster Session

13.15 – 14.45

7. Session – Luxturna Therapy – Recent Developments


Excursion by Bus to Marburg


Gala Dinner

Schloß Rauischholzhausen

Approx. 23.00

Return to Gießen

Saturday, 31st August


Onsite Registration

9.00 – 10.30

8. Session – Secondary cancer and Survival in Retinoblastoma

10.30 – 11.00

Coffee Break

Poster Session

11.00 – 12.20

9. Session – Patients in focus

12.20 – 13.10

François- Lecture

Birgit Lorenz, Gießen, Germany

12.30 – 14.00

Lunch Break

Poster Session

14.00 – 15.00

10. Session

Free papers

15.00 – 15.30

Coffee Break

Poster Session

15.30 – 17.00

11. Session – Gene and Cell based Therapies




End of Conference

General Information

General Information

This course is accredited for Continuing Medical Education (CME) by the Landesärztekammer Hessen (LÄKH) and the European Union of Medical Specialists (UEMS).

In keeping with CMA Guidelines, program content and selection of speakers are the responsibility of the planning committee. Support is directed toward the costs of the course and not to individual speakers.


The 2019 ISGEDR conference will be held in Giessen, Germany. Giessen is a regional centre of Middle Hesse located in the center of Germany. One can easily walk from the conference venue located close to the downtown area to many historical sites, hotels, restaurants, and the shopping area. The main station is at 10 min walking distance.

Learn more about Giessen and all it has to offer by clicking here.

The conference will be held at Justus-Liebig University in the great lecture hall of the Faculty of Medicine inside the newly refurbished teaching building (Klinikstrasse 29).

ISGEDR Travel Awards

The International Society for Genetic Eye Diseases and Retinoblastoma and the Section Genetics of the German Ophthalmological Society will offer up to six (6) travel grants of $1500.00 and free registration at the meeting to applicants from developing countries and to select residents-in-training on the condition that they present a paper or poster at the meeting. Travel grant application opened with the meeting registration on
April 15, 2019.

Interested applicants please contact: Dr. Markus Preising by June 16th, 2019 with a request and the following:

–  A copy of the abstract of the paper or poster
–  A statement as to how the grant will advance your knowledge in the field and help your academic institution/community
–  A copy of your C.V.

Applications will be reviewed by the committee and the winners will be notified by July 1, 2019

Justus-Liebig University, Giessen, Germany

Social Programme

Thursday 29th

Friday 30th

The Gala Dinner will be on August 29, and held in the former machine house of the Heyligenstaedt Company (Aulweg 41).


On August 30, an excursion to Marburg is scheduled. Marburg is a medievial town with a renonwed university. The participants will be guided through the old town and to the castle of the landgrave. 

The day closes with a Gala Dinner in Rauischholzhausen Castle a country estate built in the late 19th century. Rauischholzhausen castle is nowadays conference venue of the Justus-Liebig-University.

Online Registration and Fees

 Online registration opens
Monday, April 15, 2019 

Early bird registration closes August 4, 2019. 

Online registration closes
August 23, 2019. 




Regular Members of ISGEDR

Non-Members of ISGEDR

Residents and others in-training

Participants from countries classified by the World Bank List of Economies as low income or lower-middle income

US$ 575.00

US$ 690.00

US$ 345.00

US$ 345.00

US$ 690.00

US$ 805.00

US$ 460.00

US$ 460.00

Genetic Counselors / Nurses /
Orthoptists / Patients
excluding social programme

US$ 230.00

US$ 290.00

Genetic Counselors / Nurses /
Orthoptists / Patients
including social programme

US$ 345.00

US$ 460.00

Spouse registration for social events

US$ 230.00

US$ 290.00

“No single day tickets will be available”

ISGEDR Membership and Registration Form

Meeting Sponsors

Meeting Supporter

This 2019 ISGEDR meeting is supported by the Deutsche Forschungsgemeinschaft (German Research Foundation)


The content of this meeting is independent of commercial interests.

Any conflict of interest by the scientific organizers or the presenters will be disclosed in the related presentations, in the meeting proceedings, and on the meeting website.

The International Society for Genetic Eye Disease & Retinoblastoma in addition wishes to thank the following sponsors who have generously supported the 2019 ISGEDR Meeting:

Platinum Sponsor*

Gold Sponsors*

*Sponsor Support: Gold €1000-€1999, Platinum €2000+



The following is a list of a few hotels that can be found in the downtown area. We have not negotiated set rates for our conference. The selected a hotels are located in walking distance to the conference venue or easy to reach by bus. Close distance hotels are not necessarily the best choice but acceptable. Giessen Tourist Board will be happy to assist you and online booking agencies provide ratings for your decision. Prices are approximate single room rates per night. All prices in Germany include taxes. Tips are welcome but are a gesture of appreciation and not mandatory like in the US.

Hotel Tandreas

Parkhotel Sletz

Hotel Alt Gießen

Hotel am Ludwigsplatz

Parkhotel Friedrichstrasse

Hotel Steinsgarten

Hotel Name and Website

Location, Room Details and Distance

1. Parkhotel Friedrichstrasse 


Friedrichstrasse 1-3, 35392 Gießen
30 rooms – 95 EUR / night
0,4 km

Aulweg 41, 35392 Gießen
20 rooms – 120 EUR / night
1.6 km 

Westanlage 30-32, 35390 Gießen
33 rooms – 90 EUR / night
1.7 km

Hein-Heckroth-Straße 20, 35390 Gießen
123 rooms – 125 EUR / night
2 km 

5. Hotel am Ludwigsplatz

Ludwigsplatz 8, 35390 Gießen
37 rooms – 85 EUR / night
2 km

Wolfstraße 26, 35394 Gießen
20 rooms – 105 EUR / night
2.5 km
Bus line 1 – (Busstop: Wolfstrasse) destination Lützelinden
drop off Klinikstrasse, 5 min walk to venue

7. Hotel Tandreas

Licher Str. 55, 35394 Gießen
20 rooms – 119 EUR / night
2.5 km
Bus line 2 – (Busstop Lutherberg) destination Bahnhof
drop off Central station (Bahnhof), 10 min walk to venue

8. Residenz Hotel Gießen

Wiesecker Weg 12, 35396 Gießen
33 rooms – 90 EUR / night
3.3 km
Bus line 5, 371 – (Busstop Wiesecker Weg) destination Bahnhof
drop off Central station (Bahnhof), 10 min walk to venue

Hotels (blue pins)

Events (red pins)

Conference Site (CS)
Teaching Building of the Medical Faculty of Justus-Liebig University
Klinikstrasse 29, 35392 Gießen, Germany

Gala Dinner (GD)
Thursday August 29, 2019
Restaurant Heyligenstaedt, Aulweg 41, 35392 Gießen, Germany

Gala Dinner
Friday August 30, 2019
Rauischholzhausen Castle, Schlosspark 1, 35085 Ebsdorfergrund, Germany

How to reach the meeting venue?

Transfer from Frankfurt (Main) Airport to

By Train – Deutsche Bahn AG

Take the commuter train (S8 / S9) from Frankfurt Airport (Frankfurt am Main Flughafen Local Trains) to Frankfurt Central Station (Frankfurt (Main) Hbf). Avoid ICE, IC trains and safe money.

Change to Regional Express (RE, RB) trains from Frankfurt Central Station (Frankfurt (Main) Hbf) to Giessen Central Station
Online Search is available by Deutsche Bahn:
Duration: 70 – 100 minutes | Ticket cost (adults): 16.00 € (single, all way to Giessen)

Note: Train tickets can be purchased at the ticket dispensers on track and online 

By Taxi
with a taximeter are permanently available in front of the arrivals hall. Licensed taxis are beige and have a black and yellow sign “TAXI” on the top.
Duration: ± 44 minutes | Estimated cost: ±133 €
Mini Cars (
available by appointment only)
Star Taxi-Minicar Tel: +49-641-33 33
Lahn City Car +49-641-82082
Fares on request, about 50% of taxi costs (Contact forms in German only)

Transfer from Giessen Central Station to Conference Venue


The venue is in 10 minute walking distance from the central station. Step out of the main entrance of the station, cross the bridge left hand and follow the street (Friedrichstrasse) passing the traffic lights (Frankfurter Strasse). Turn right at the bar protected gate and follow the street straight ahead by passing the Department of Ophthalmology (left side) straight through to next intersecting street (Klinikstrasse) by finally passing the venue (left side).

By Taxi


Taxis with a taximeter are available in front of Giessen Central Station. Duration: ± 5 – 15 minutes | Estimated cost: ±5 €

Taxi costs depend on the closing of the rail road crossing the taxi needs to cross on its way to the venue.

Travelling By Car?

Main Autobahn/Motorway Routes: