Welcome to the ISGEDR Website

ISGEDR

The International Society for Genetic Eye Diseases and Retinoblastoma ISGEDR brings together individuals interested in the field of genetic diseases of the eye and in Retinoblastoma. • To provide a forum for researchers in the field of genetic diseases of the eye to share information. • To promote international collaborations in the study of genetic diseases of the eye and in Retinoblastoma. • To disseminate scientific knowledge through international conferences and through its official publication, Ophthalmic Genetics

Countdown begins to ISGEDR Meeting 2027 Auckland

Countdown begins to ISGEDR Meeting 2027
Auckland – New Zealand

Dear ISGEDR Member

As you remember, we invited you and all members in good standing to vote on the location of the 2027 meeting. Following the vote, we can announce the venue for ISGEDR Meeting 2027 is Auckland, New Zealand.

The Meeting dates have been set to September 4-6, 2027. The meeting Chair and Hostess will be Andrea Vincent MBChB, MD,FRANZCO Associate Professor, Ophthalmology, FMHS, University of Auckland
Consultant Ophthalmologist, Auckland District Health Board.

More details will follow.

Thank you for your continued support of the Society.

Arlene V. Drack, Bart P. Leroy and Elias I. Traboulsi

Renew your ISGEDR Membership for 2027

ISGEDR Standard Membership

2027 Standard Membership

You are purchasing a Standard Membership for the Calendar Year 2027.

As a benefit of your membership you will receive an electronic subscription to Ophthalmic Genetics, the official publication of the Society.

Additionally, you will eligible for reduced registration fee at the bi-annual meeting.

$200.00

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Genetic Conselors, Residents and Fellows in Training

2027 Genetic Counselors, Residents and Fellows in Training

You are purchasing a Genetic Counselors, Residents and Fellows in Training Membership for the Calendar Year 2027.

As a benefit of your membership you will receive an electronic subscription to Ophthalmic Genetics, the official publication of the Society.

Additionally, you will eligible for reduced registration fee at the bi-annual meeting.

$120.00

Out of stock

50th Anniversary OGSC 2026 Hybrid Meeting

OGSC 2026 - 50th Anniversary Group Photograph

OGSC 2026 - Final Scientific Programme

ISGEDR Quarterly Newsletter - Volume 1 - Issue 2

Summer 2026 ISGEDR Newsletter

Welcome to the Summer 2026 ISGEDR Newsletter! Full of the latest news for ISGEDR Members, this quarterly publication is intended to keep members informed, engaged, and connected to your ISGEDR colleagues. Please distribute to any friends and colleagues who you feel would benefit from its contents. 

In Memoriam: Professor Andreas Gal

Dear Members and Friends of ISGEDR

With great sadness, we inform you that our beloved colleague and leader Professor Andreas Gal passed away on May 20, 2026 in Bremen, Germany. Andreas was born September 18, 1947 in Debrecen, Hungary. He continued his work as Associate Editor for Ophthalmic Genetics until the end. May he rest in peace. Andreas will be so dearly missed but never forgotten. We offer our sincere condolences to family, friends, and colleagues.

A. Linn Murphree (right) with Francis Munier in Lausanne, February 2016

Professor Gal receiving the Francois Memorial Lecture Certificate from
ISGEDR President Professor Birgit Lorenz at the ISGEDR meeting in 2017 in Leeds, England.

Traboulsi and Brooks wrote an editorial for the August 2025 Festschrift issue of Ophthalmic Genetics honoring Professor Gal. Please go to https://www.tandfonline.com/doi/10.1080/13816810.2025.2536658?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub  0pubmed and read it for an overview of his academic life and accomplishments.

The Executive Committee of ISGEDR

Join us for the Golden Anniversary - OGSC 2026

Registration fee: $100.00 Virtual – $150.00 In Person

'In Person’ registration fees will includes breakfast, lunch and coffee breaks. Registration linked HERE

Dear Friends and Colleagues

Please join us for the 50th meeting of the Ophthalmic Genetics Study Club. This is the Golden Anniversary of this distinguished group, and we are planning a very special program. Not only will we have the usual engaging participation by members and guests, but Professor Irene Maumenee will treat us to what promises to be an amazing presentation, the contents of which will cover the past, present and future of our beloved field of Ophthalmic Genetics.

We hope to see you in New Orleans on Thursday 8th October at 7.30am

For registration and to submit an abstract please register linked HERE

 

The Organizing Committee - E. Traboulsi, V.  Utz and A. Dumitrescu

OGSC 2026 Hybrid Meeting - Save the Date

Registration Open:

$150 for In Person  –  $100 for Virtual

OGSC 2026 Hybrid Meeting

Thursday, October 8, 2026

8:00 am to 5:00 pm USA Central Daylight Time (CDT)
Breakfast 7:30 am - Meeting begins 8:00 am

The Hilton Garden Inn

1001 S. Peters Street, New Orleans, LA, 70130, US

Our venue for OGSC 2026 - Hilton Garden Inn New Orleans

ABSTRACT SUBMISSIONS - CLOSED

Now accepting abstract submissions, DEADLINE is Monday, September 7, 2026
(reminder all abstracts accepted must be presented IN PERSON)

2026 OGSC Genetic Counselor Travel Stipend Application

The International Society of Genetic Eye Diseases is proud and excited to offer one genetic counselor a travel stipend in the amount of $1500 in order to attend the 2026 Ophthalmic Genetics Study Club to be held on Thursday, October 8, 2026 at The Hilton Garden Inn in New Orleans, LA. Please complete the application in its entirety if you are interested in being considered.

Scan the QR code above or use the Application Link HERE


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Ophthalmic Genetics Study Club 2026 Meeting Registration

OGSC – In Person

Please join us for another fabulous OGSC hybrid meeting this October in New Orleans.

Ophthalmic Genetics Study Club (OGSC)
Hybrid Meeting – Thursday, October 8, 2026
8:00 am to 5:00 pm USA Central Daylight Time (CDT)
The Hilton Garden Inn, 1001 S. Peters Street, New Orleans, LA, 70130, US
'In Person’ registration fees will includes breakfast (7:30 am), lunch and coffee breaks.

This year we shall again be going Hybrid. Please note you are purchasing an In Person Registration
'In Person’ registration fees will includes breakfast, lunch and coffee breaks

ALL delegates will also receive the Zoom Webinar Link to allow interaction with the Moderator and online delegates in the Chat and Q&A.

As usual, the Webinar will be recorded and be available shortly after the event on the ISGEDR website.

$150.00

OGSC – Virtual

Please join us for another fabulous OGSC hybrid meeting this October in New Orleans.

Ophthalmic Genetics Study Club (OGSC)
Hybrid Meeting – Thursday, October 8, 2026
8:00 am to 5:00 pm USA Central Daylight Time (CDT)
Presented Virtually as a Zoom Webinar from The Hilton Garden Inn, 1001 S. Peters Street, New Orleans, LA, 70130, US

This year we shall again be going Hybrid. Please note you are purchasing a Virtual Registration
ALL delegates will receive the Zoom Webinar Link in the week prior to the event.

As usual, the Webinar will be recorded and be available shortly after the event on the ISGEDR website.

$100.00

OGSC 2026 Hybrid Meeting - Abstract Submission Form
ABSTRACT SUBMISSIONS CLOSED

Abstract Submission Form
SUBMISSIONS CLOSED

Abstract Submission Deadline is Monday, 7th September

    ISGEDR Quarterly Newsletter - Volume 1 - Issue 1

    Welcome to the inaugural ISGEDR Newsletter!

    Welcome to the inaugural ISGEDR Newsletter! This quarterly publication is intended to keep members informed, engaged, and connected to the International Society for Genetic Eye Diseases and Retinoblastoma (ISGEDR).  

    2026 ACMG Meeting - Baltimore - Where Genetics Meets Innovation

    About the ACMG Annual Clinical Genetics Meeting

    The American College of Medical Genetics and Genomics invites you to the 2026 Annual Clinical Genetics Meeting in Baltimore from March 10-14, 2026. Come and discover the latest research and innovative advances in clinical genetics, exchange ideas with colleagues and hear about new gene therapies.

    One Retinoblastoma World 2026 - San Antonio, Texas

    Welcome to One Rb World 2026, San Antonio, Texas
    Saturday, September 12 – Monday, September 14, 2026

    The 8th One Rb World Conference will take place immediately before the 58th World Congress of the International Society of Pediatric Oncology, which will be held in San Antonio, September 15-18, 2026.

    Welcoming retinoblastoma patients, survivors, family members, medical professionals and scientists, we look forward to sharing three full days of One Rb World programming, community and collaboration in the Lone Star State.

    One Rb World 2026 will be hosted by World Eye Cancer Hope USA, organized together with Jesse Berry M.D., Director of Ocular Oncology and Retinoblastoma at Children’s Hospital Los Angeles (CHLA); Patricia Chévez-Barrios, M.D., Director of Ophthalmic Pathology Residency Program and Professor of Pathology and Genomic Medicine at Houston Methodist Hospital in Texas; Maura Di Nicola M.D., Assistant Professor of Clinical Ophthalmology at Bascom Palmer Eye Institute in Miami, Florida; and Dan S. Gombos, M.D., Professor at the Department of Head and Neck Surgery in the Division of Surgery at the University of Texas MD Anderson Cancer Center in Houston, Texas.

    We recognize our 2026 conference falls during Rosh Hashana, and we apologize for any conflicts this may create. We hope many in our community will still be able to participate, and we remain committed to making the conference as accessible and inclusive as possible.

    ISGEDR 2027 - Where in the World?
    Submissions Date extended until 31st January 2026

    ISGEDR 2027 Meeting Host Application:

    Offering to serve as host is a wonderful professional opportunity and also a tremendous effort. ISGEDR is always keen to partner and organize this meeting jointly with any national society focusing on genetics and/or retinoblastoma. Use the above QR code or use this direct link: https://forms.gle/rQ2tJ43SbCZS1A3b9
    Submissions will be accepted until 31st January 2026 with Voting then opening up until 1st March 2026.

    Program

    We are excited to announce the ISGEDR 2025 Oslo program!

    This year’s meeting will feature a diverse and dynamic lineup of speakers and sessions, including the prestigious named lectures: the Franceschetti Lecture, Ellsworth Lecture, Judith Kingston Lecture, and François Lecture. The program also includes paper and poster sessions, cases, mini-symposiums, patient sessions, and the EURBG Business Meeting - all highlighting the latest developments in the field.

    While most of the schedule is now available, a few details are still being finalised. We encourage you to check back regularly to download the most up-to-date version of the program.

    We look forward to welcoming you to an engaging and inspiring meeting in Oslo!

    Ocular Genetics Fellowship - Accepting Applications

    Ocular Genetics Fellowship

    We are accepting applications for one of our fully funded ocular genetics fellowship slots and welcome both national and international applicants. This would be for a July 1, 2026 start. Deadline for applications is end of August. Interested candidates can contact me directly alex_levin@urmc.rochester.edu. Please circulate this widely.

    Thanks!

    Alex V. Levin, MD, MHSc, FAAP, FAAO, FRCSC
    Adeline Lutz - Steven S.T. Ching, M.D. Distinguished Professorship in Ophthalmology
    Chief, Pediatric Ophthalmology and Ocular Genetics
    Flaum Eye Institute
    Chief, Clinical Genetics
    Golisano Children’s Hospital and University of Rochester Medical Center

    Ophthalmic Genetics – FREE Subscription

    The Journal is the official publication of ISGEDR and the OGSC. Members of ISGEDR receive a free subscription to the Journal and have access to all back issues.

    Click here to visit the home page of Ophthalmic Genetics on the Informa Publisher website

    You may need to request to join the ISGEDR group on LinkedIn to gain access to this page.